Heritage Biologics Blog

Inspirational Parent Perspective

Posted by Christopher Kennedy on Sep 8, 2017 3:32:29 PM


Heritage Biologics recently had the opportunity to support an important venue for rare disease patients called DISORDER: The Rare Disease Film Festival. This event takes place on October 2nd & 3rd in Boston and will feature over 30 films from around the world. Learning, sharing, and celebrating the rare disease patient experience is important to advancing the science for these disorders. We were fortunate to connect with Daniel DeFabio and learn about his inspiring story as a father of a rare disease patient.

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Topics: Healthcare, rare disease, Patient Experience, rare disease film festival, rare

PX: The New Superpower!

Posted by Michael Montgomery on Jul 25, 2016 2:09:39 PM

My name is Mike and I have a genetic mutation disorder called Hemophilia. Unfortunately, I didn’t gain any super natural powers like X-men. I may not be able to blast laser beams out of my eyes or have metal alloy claws bolt out of my hands, but this mutant was gifted a power unlike any X-men. I have the power of voice. I am an Advocate. I am a Patient Experience Navigator!

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Topics: Pharmacy Patient Experience, Patient, hemophilia, rare disease

WE ARE CHANGING HEALTHCARE

a rare tradition of care

The Patient Experience (PX) is our passion here at Heritage Biologics. Our commitment is to provide preeminent specialty pharmacy and infusion services. This simply means...that the patient is at the center of everything we do...including this blog.

OUR BLOG OFFERS:

  • A Patient Voice
  • Advocacy
  • Education
  • Resources

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