Heritage Biologics recently had the opportunity to support an important venue for rare disease patients called DISORDER: The Rare Disease Film Festival. This event takes place on October 2nd & 3rd in Boston and will feature over 30 films from around the world. Learning, sharing, and celebrating the rare disease patient experience is important to advancing the science for these disorders. We were fortunate to connect with Daniel DeFabio and learn about his inspiring story as a father of a rare disease patient.
I made a commitment to my sons that I would pick them up from their first day of school this week. I scheduled my return flight extra early to avoid the potential delay that is common out of Chicago airports. In fact, I gave myself a 5-hour cushion, but that wasn’t enough on this sunny day. They boarded all passengers and minutes later had us all exit the plane because it was “due for scheduled maintenance.” Scheduled maintenance? We were notified moments later that our new flight would not leave for another 6 hours. Yes, 6 hours. I refused to be stopped in my mission, and I escaped by taxi across town to O’Hare Airport in attempt to fly on a different airline.
In the past two weeks, I’ve encountered three different patient scenarios where competitive pharmacies are trying to block their patients from choosing an alternative provider. Give me a break.
First of all, we would like to say thank you to the entire Kansas City area for your support over the past few years. As an organization, we knew that the best place in the USA to develop a leading healthcare solution was here in KC!
Noise. Loud noise actually. Isn’t this our new communication norm now that advanced technology rules the day? Cellphones, tablets, laptops, and apps, all combined to provide so much access that it is becoming more and more like white noise. Selective hearing is the skill we attempt to master during our daily face-to-face conversations that occur as we simultaneously wrestle with insignificant text messages to others at the same time. You know, that good old “this person doesn’t care what I’m saying” feeling as the person you’re talking to alternates glances between their phone and your forehead. Ironically, the Patient Experience has suffered for years from this type of congested communication process. Patient’s just haven’t been heard.
I had the privilege of attending Harvard Business School's Value Measurement for Health Care executive program last month. Michael Porter and Robert Kaplan had a clear message to all of us regarding health care performance - "Measure It!".
Taking a family hike is always interesting, especially when the trail leads you past a steep cliff. Caution becomes the focus, not the beautiful view. I had no idea that healthcare lessons could be found at our local conservation park last week:
- Each year hospitals spend millions to build or improve their Patient Experience Programs.
- HCAHPS surveys highlight critical areas of improvement for patients being discharged.
- Specialty and Home Infusion Pharmacies can catch patients falling off The PX Cliff.