Heritage Biologics Blog

Inspirational Parent Perspective

Posted by Christopher Kennedy on Sep 8, 2017 3:32:29 PM


download.pngHeritage Biologics recently had the opportunity to support an important venue for rare disease patients called DISORDER: The Rare Disease Film Festival. This event takes place on October 2nd & 3rd in Boston and will feature over 30 films from around the world. Learning, sharing, and celebrating the rare disease patient experience is important to advancing the science for these disorders. We were fortunate to connect with Daniel DeFabio and learn about his inspiring story as a father of a rare disease patient.

Daniel and his family have been on a mission to create awareness and help find better care for their child's condition. His remarkable story is featured here at The Mighty. A father who has worked tirelessly to help create awareness about his son's condition seeks to give other parents that same platform. Sharing very personal stories in hopes of helping others. This takes strength. This takes commitment. This take true love. Thanks for leading Dan!

Visit: www.rarediseasefilmfestival.com 

 

Topics: Patient Experience, rare disease, rare disease film festival, rare, Healthcare

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